an update ~

We’ve been on quite a bit of a roller coaster ride with Rosemary, as it seems our travel/surgery plans are changing daily. Where we once thought we had a bit of time before her first surgery to do some traveling this week to get a second opinion, things have changed and now tomorrow she goes in for her first mid-vault decompression. This is a surgery they typically like to wait on, but her brain is under too much pressure and it must be done immediately.

If I can possibly get my hands on a laptop, I’ll be updating her recovery in this space. I know so many of you have been coming back frequently to check on her. You will never know how much I appreciate all of the comments you’ve written me, sending your thoughts and prayers. We really need every one of them. We’re trying to take this one day at a time, sometimes my minds skirts away – too far away – and I get anxious and I have to pull myself back into the present. Thank you again and again for all that you have done for our family and our sweet Rosemary. She is truly a light!!

Be back soon!!!

Welcome Rosemary Lee ~

Our newest baby girl was born on Labor Day evening at 9:15 pm at home in the water. It was a beautiful & spiritual labor and birth.

We realized when she was born, that she had some abnormalities in the shape of her head. We spent the next 5 days in the Pediatric Intensive Care Unit with a team of physicians and surgeons and came up with a plan to treat her immediate health concerns and her long term development. She has been diagnosed with Craniosynastosis with suspected Crouzon Syndrome.

We are heartbroken as you can imagine, but take each day one at a time. We love her so much and have seen many answered prayers and blessings during our first week journey with Rosemary. She is truly an angel.

We came home on Saturday and got settled back into our nest with the rest of our family. The other children adore her and we’re getting on a great routine. She nurses fabulously and is sleeping long stretches at night – what a dream baby! We know she will teach us so much, and we feel honored to be entrusted to raise such a special child.

Please keep us in your prayers – especially for the upcoming surgeries to go well and for her to be able to live a normal life.