On Tuesday, Rosemary told us we needed to go back to the hospital. She turned blue - had an apnea spell - around noon on Tuesday right after a feeding. I got her on an oxygen tank we had at home and she was able to recover. This is the first time we've seen her do this. Hours later when we got settled in the PICU, she started to have more of these Apnea episodes. She had them from about 5:00pm to 11:00pm (every couple hours) that night until she fell asleep. None occurred during the night, but then they started reoccuring once she woke at 5:00am. Yesterday morning she had a EEG, and an upper GI test which both revealed a seizure and severe reflux component to these Apnea spells. She's now on medication for the seizures and reflux and is being fed by a feeding tube bypassing her stomach into her small intestine and has not suffered from any more of the apnea spells since!! We are so relieved that they have stopped. We're not sure when we'll be going home but will be giving updates as much as we can. This was such a surprise to us, but we believe that Rosemary will continue to let us know what she needs. We love her so!!!
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