Our sweet little Rosemary has reached a point where she needs to have surgery. Two in fact. The first will be a frontal advancement which will advance her forehead and give her frontal lobe more room to grow, build orbits at her brow, and build a nasal bridge. We always knew this surgery was one of the ones she would have one day. Six months ago, her team didn't see the need, but at our last craniofacial clinic appointment it was starting to show that some of the bones in her face and forehead weren't growing as fast. After the clinic appointment, an overnight sleep study was ordered and she's been recommended to have a trach placed with this frontal advancement surgery because she has severe obstructive sleep apnea. It's not what we have wished for our little girl, but this little girl needs all the oxygen she can get. We leave tomorrow for Dallas and Wednesday will be the big surgery day. Thank you all for your love and support as we are still headed down a road we can't always predict with our little girl.
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